Parkinsonian Links
Foundations
relating to Parkinson's Disease
Parkinson Foundations in U.S. - Nationwide
Maybe it's because I live here that I know of so many.
| American Parkinson's Disease Association. - APDA | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Website: http://www.apdaparkinson.com | ||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
| Address: 1250 Hylan Boulevard Staten Island, New York 10305 Phone: 718-981-8001 or 800-223-2732 Fax: (718) 981-4399 E-mail: apda@admin.con2.com West Coast Office: 10850 Wilshire Blvd., Suite 730 Los Angeles, CA 90024 Phone: 800-908-2732 Fax: 310-474-0292 E-mail: apdawc@earthlink.net |
The American Parkinson Disease Association, Inc., founded in 1961, has sought to "Ease the Burden and Find the Cure" for this disease through research, patient and family support and education. | |||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
Bachmann Strauss Dystonia & Parkinson Foundation
| Website:http://www.dystonia-parkinsons.org/ | Address: |
One Gustave L. Levy Place Box 1490 New York, NY 10029 Phone: 212-241-5614 Fax: 212-987-0662 E-mail: Bachman_Strauss@smptlink.mssn.edu The Bachmann-Strauss Dystonia & Parkinson Foundation, Inc. was
established in 1995 to support ongoing research towards discovering the
cause and cure for Dystonia. The foundation's mission involves raising
funds to support research, provide treatment, promote medical and
patient education, and sustain local and regional support groups for
patients affected with Dystonia and their caregivers. | Coalition for the Advancement of Medical Research - CAMR | Website: www.camradvocacy.org | Address: |
2120 L Street NW - Suite 850 Washington, DC 20037 C.A.M.R. is comprised of nationally-recognized patient organizations, universities, scientific societies, foundations, and individuals with life-threatening illnesses and disorders, advocating for the advancement of breakthrough research and technologies in regenerative medicine - including stem cell research and somatic cell nuclear transfer - in order to cure disease and alleviate suffering. | The Michael J. Fox Foundation for Parkinson's Research | Website: http://www.michaeljfox.org/ | Address: | Grand Central Station Post Office Box 4777 New York, NY 10163 Phone: 800-708-7644
The Michael J. Fox Foundation for Parkinson's Research is dedicated to ensuring the development of a cure for Parkinson's Disease withinn this decade through an aggressively funded research agenda. | The Movement Disorder Society MDS | Website: http://www.movementdisorders.org/ | Address: | 611 East Wells Street Milwaukee, WI 53202 Phone: 414-276-2145 Fax: 414-276-3349 E-mail: info@movementdisorders.org The Movement Disorder Society (MDS) is an international professional society of clinicians, scientists, and other healthcare professionals, who are interested in Parkinson's disease, related neurodegenerative and neurodevelopmental disorders, hyperkinetic Movement Disorders, and abnormalities in muscle tone and motor control. | National Parkinson Foundation, Inc. - NPF | Website: http://www.parkinson.org | Address: |
1501 NW 9th Ave./Bob Hope Rd. Miami, Florida 33136 Phone: 305-547-6666 or 800-327-4545 Fax: 305 548-4403 E-mail: mailbox@npf.med.miami.edu Our mission: | To find the cause and cure for Parkinson's disease and related neurodegenerative disorders through research. To educate general medical practioners to detect the early warning signs of Parkinson's disease. To educate patients, their caregivers and the general public. To provide diagnostic and therapeutic services. To improve the quality of life for both patients and their caregivers. Parkinson Alliance | Website: http://www.parkinsonalliance.net | Address: | Post Office Box 308 Kingston, NJ 08528-0308 Telephone: 609-688-0870 or 800-579-8440 Fax: 609-688-0875 E-mail: admin@parkinsonalliance.org
The Parkinson Alliance is a national non-profit organization dedicated to raising funds to help finance the most promising research for Parkinson's disease. Donations are matched so that 100% goes for research to help find the cause and cure for this progressive, debilitating neurological disease. | Parkinson's Action Network - PAN | Website: http://www.parkinsonsaction.org | Address: |
1000 Vermont Avenue NW - Suite 900 Washington, DC 20005 Phone: 800-950-4726 or 202-842-4101 Fax: 202-842-4105 E-mail:info@parkinsonsaction.org The Parkinson's Action Network (PAN) is the unified advocacy voice of the Parkinson's community, fighting for a cure within five years. Through education and interaction with the Parkinson's community, scientists, policy and opinion leaders, and the public at large, PAN advocates for increased and accelerated investment of public resources to ease the burden and bring a cure to the million Americans who suffer from Parkinson's. | Parkinson's Disease Foundation - PDF | Website: http://www.pdf.org | Address: |
710 West 168th St. - Third floor - New York, NY 10032-9982 Phone: 212-923-4700 or 800-457-6676 Fax: 212-923-4778 E-mail: PDFCPMC@aol.com Midwest office: 833 West Washington Blvd. Chicago, IL 60607 Phone: 312-733-1893 E-mail: PDFCHGO@enteract.com Our mission is twofold: (i) to help lead the search for the cause and cure
of Parkinson's disease, by supporting medical and scientific research of the
highest caliber; and (ii) to help those individuals and families who suffer
with the condition, by offering programs of information, education and public
advocacy.
| Parkinson's Institute - PI | Website: http://www.parkinsonsinstitute.org/index.html | Address: |
1170 Morse Avenue Sunnyvale, CA 94089 Phone: 408-734-2800 or 800-655-2273 (Canada) or 800-786-2978 (US) Fax: 408-734-8522 E-mail:: outreach@parkinsonsinstitute.org The Parkinson's Institute is an independent, not-for-profit organization conducting patient
care and research activities in the neurological specialty area of movement disorders. Our
mission is to find the cause and cure for these disorders, to investigate better treatment and
diagnostic tools, and to develop prevention strategies. Physicians at the Institute focus
solely on movement disorders; in fact, the Institute was founded to provide patient services
and carry out medical research for these difficult diseases. | Parkinson Study Group - PSG | Website:http://www.parkinson-study-group.org/ | Address: | 1351 Mount Hope Avenue Rochester, NY 14620 The PSG was formed in 1986, prompted by the recognition that clinical research in Parkinson's Disease (PD) required the participation of large numbers of research patients (subjects) under the cooperative care of skilled and experienced research physicians. | Parkinson Unity Walk | Website: http://www.unitywalk.org | Address: | 633 Third Avenue - 27th floor New York, NY 10017 Phone: 866-789-9255 Fax: 609-688-0875 E:mail: info@unitywalk.org
The Parkinson Unity Walk is not a foundation, but it has been an annual event since 1994, and there is no better place to mention it. The 2004 Walk is scheduled for Saturday, 24 April. See the web page for details. | PLWP, Inc., People Living With Parkinson's | Website: http://www.plwp.org/ | Address: | Post Office Box 25310 Rochester, NY 14625-0310 E-mail plwp2000@yahoo.com THE PEOPLE ORGANIZATION...The heart of PLWP is its people...people who are living with Parkinson's. The beating of the heart is the sharing and is done in the PLWP Chat Room! | Stem Cell Action | Website: http://www.stemcellaction.org | Address: | 300 Garden City Plaza - Suite 234 Garden City, NY 11530 Phone: 516-294-8607 E-mail: idelle@stemcellaction.org The future of Stem Cell Research may hold the clues for the cure to Parkinson's. This grass roots, volunteer group joins with our nation's scientific and medical associations and institutes in supporting stem cell research, including somatic cell nuclear transfer (SCNT). | Take Charge - Cure Parkinson's, Inc. | Website: http://cureparkinsons.org | Address: |
1489 West Palmetto Park Road - Suite 1442 Boca Raton, FL 33486 Phone: 561-620-1970 E-mail: cureparkinsons@aol.com Take Charge! Cure Parkinsons has been aggressively collecting funds for Parkinsons reasarch and for assisting in the well-being of Parkinsonians, especially in Florida. | Team Parkinson | Website: http:www.teamparkinsonla.org | Address: | 6412 Broadway Avenue Whittier, CA 90606 Phone: 866-822-2873 Fax: 562-699-2917 Team Parkinson is a non-profit organization staffed by volunteers and dedicated to finding a cure for Parkinson's disease. Under the guidance of The Parkinson Alliance and the Parkinson's Unity Walk, we guarantee that 100% of all net proceeds go directly to research. A portion of donations will stay in the local research community. Team Parkinson has helped fund grants to USC and UCLA. | | | Parkinson Foundations Worldwide | - Outside the U.S. - European Parkinson Disease Association - EPDA | Website: http://www.shef.ac.uk/misc/groups/epda/home.html | Address:Postbus 46 |
3980 CA Bunnik The Netherlands Phone: (31) 306-561-369 Fax: (31) 306-571-306 E-mail: not found AIMS: To promote international understanding of Parkinson's disease. To enable patients and carers to draw on best caring practice worldwide. To access the latest medical and surgical advice. To make informed choices to achieve the best quality of life possible.
| Mary Baker, president of EPDA, has her main offices at PDS in the United Kingdom. | For the time being, at least, rather than reinvent the wheel, I refer you to this website. | Or click on the country of interest.
-Argentina-
-Australia-
-Austria-
-Belgium-
-Brazil-
-Canada-
-Chile-
-Colombia-
-Czech Republic -
-Denmark-
-Faroes-
-Finland-
-France-
-Germany-
-Iceland-
-India-
-Ireland-
-Israel-
-Italy-
-Jamaica-
-Japan-
-Luxembourg-
-Mexico-
-Netherlands-
-New Zealand-
-Norway-
-Peru-
-Slovenia-
-South Africa-
-Spain-
-Sweden-
-Thailand-
-Switzerland-
-United Kingdom-
-Western Australia
| World Parkinson Disease Association - WPDA | Website: http://www.wpda.org | Address: | via Zuretti, 35 20125 Milano, Italy Phone: [39] 02 66713111 Fax: [39] 02 6705283 E-mail: info@wpda.org
We are also aware that patients familiar with their ailment usually can take better control of their lives and are able to assist the medical and paramedical professionals in providing them with a better quality of life. | | Neurological Foundations in the U.S. | with important Parkinson content in their web sites. Dana Foundation | Website: http://www.dana.org/ | Address: | 745 Fifth Avenue, Suite 900 New York, NY 10151 Phone: not found Fax: not found E-mail: danainfo@dana.org The Dana Alliance, a nonprofit organization of more than 170 neuroscientists,
was formed to help provide information about the personal and public benefits of
brain research.This site will help answer questions about brain-related research
and provide information about new developments in that research. | National Coakition for Disability Rights - NCDR | Website: http://www.adawatch.org | Address: 1201 Pennsylvania Avenue NW |
Suite 300 Washington, DC 20004 Phone: 202-661-4722 Fax: 202-318-4040 E-mail: info@adawatch.org ADA Watch and the National Coalition for Disability Rights operate with an all
volunteer staff and board. We need your support to continue to inform the grassroots,
educate the media and the public regarding threats to the ADA and the human rights of
people with disabilities. | We Move | Website: http://www.wemove.org | Address: Post Office Box 1279 |
Riverdale, NY 10471-1279 Phone: 212-241-8567 800-437-6682 Fax: 212-241-7363 E-mail: wemove@smtplink.mssm.edu WE MOVE (Worldwide Education and Awareness for Movement Disorders) is a not-for-profit
organization whose primary mission is to increase awareness of movement disorders among
healthcare professionals and the public. | | |||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||||
Return to Links Page, "Organizatons"
E-mail me with comments at
epr@airmail.net.| It is a sad fact that every web page
like this must add "Disclaimers apply." Revised 14 October, 2004 | |||
Web page http://www.ccastle.org/afounda.html